In the attempt to expedite the collection of names for Julia's petition, the Epilepsy Contact Database has set up a form at the bottom of this page that will allow you to submit the requested information directly to Julia Lahr.

What follows is her article which appeared in the Fall 1998 issue of the Epilepsy Foundation of Greater Chicago's "Epigram."

"I urgently need help to save my child's life and am seeking 10,000 signatures on a petition to the Food and Drug Administration (FDA). Please contact me if you can help.

My daughter, Courtney, is a beautiful 6-year-old with life threatening epilepsy. She suffers from Myoclonic, Absence, A-Tonic and Tonic-Clonic seizures and has very frequent episodes of status epilepticus. She has been on every appropriate seizure medication available in the United States, but other than "honeymoon" phases" with several drugs, she is not responding, nor is she a surgical candidate. My son, Justin, is 9 years old and was recently diagnosed with epilepsy. Thankfully, he has responded well to medications.

I want the Food and Drug Administration to quickly approve a child size Vagal Nerve Stimulator, so Courtney and other children in need of an implant can have one. You can help by circulating the petition enclosed and returning it to me quickly.

I can be reached at: Lahrfamily@aol.com. Voice mail: (815) 767-0484"

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If you wish to help in a small way, please fill out the following information and then click on the submit button. The information you provide will be sent directly to Julia and will be used only to benefit this cause.

Please feel free to e-mail me at josw@datasync.com with any questions or concerns.

Thank you, James Waddell

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